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Saturday, November 7, 2015

Unpacking from a Trip to Heaven

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For months, I've clung to the idea that one of my favorite pair of sandals were still in a hidden pocket in my suitcase. Keith had unpacked it when I was in my coma, and it was understandable that he might miss them in that fraught time. After all, surely I couldn't have left them in Sicily--we checked all the drawers and shelves as we packed up from the hotel. But when I was writing my latest post for the Secular Spectrum, I was forced to check the suitcases. They were indeed missing from those hidden pockets. Gone forever, since it's unlikely the hotel would've kept them for two years.

I think the opposite happened when Eben Alexander "unpacked" what happened during his near-death experience. I think many of his "memories" became distorted by his later research and other influences.

As I've said before, memory is not like Memorex; it's more like Play-Doh.

Here's the link to the post: Unpacking from a Trip to Heaven

Thursday, November 5, 2015

A major advance in covert cognition detection

Both the left and center scans are of vegetative patients who were behaviorally identical. The scan on the right was of a healthy control.
Somewhat amusingly, I learned about a recent breakthrough in covert awareness detection using EEGs while I was researching a future post for the Secular Spectrum that will in part be about Eben Alexander (yes, him again). After all, I contend that he was simply experiencing a form of covert cognition during his NDE, much as I was.

In a related stories link within a typically sensationalist Daily Mail article about Alexander's story, I found an article that I initially dismissed--after a quick skim--as only being about Adrian Owen's tennis study and the Owen Lab's Hitchcock study, both of which I'm a intimately familiar with. But I'm a terrible skimmer, and it turns out that the article was really about a 2014 Cambridge study (the university where Dr. Owen conducted his famous tennis study) that had employed the tennis technique to test a method of using EEGs to map patterns of brain activity in vegetative patients. Using graph theory, they detected coordinated signals of brain activity, which indicated that the neuronal networks of the subset of patients who were covertly aware connected in similar patterns as the study's healthy controls. They were able to cross-reference their results with fMRI scans by asking the same patients to imagine playing tennis while having their brain activity measured by each form of scan. The same patients whose fMRI scans indicated that they were imagining playing tennis also showed the signature signs of that activity during their EEGs. The above image shows two vegetative patients on the left and in the center. The one on the right is a healthy control. As you can see, the one in the center is virtually identical to the one on the right.

This is what co-author of the study, Tristan Beckinschtein, said about the detection of covert cognition:
This data gives you a different way to think about what the patients can do. You can do the classic test to see if the patient is responding or not. But even if the patient shows nothing, you may see a well-informed information processing network using EEG. And if that is the case, regardless of any other test, the clinician can say, "This guy has the potential to process information. I don't know why he's not processing information, but maybe we can find out." And hopefully, knowing that capacity is there will make physicians keep their eyes open and less likely to write the patient off.
As my doctors did.

For those who aren't regular readers of my blog, I should point out that I received an EEG, which not surprisingly showed that my brain was functioning. Yet it couldn't detect my covert cognition. Eben Alexander hasn't released his medical records, but if he had his EEG would undoubtedly show that his brain was functioning, as well. If it hadn't been, that would mean that he was brain-dead, and he wouldn't have been able to write his two books about his near-death experience, just as I wouldn't be typing this sentence now.

Oh, and by the way, when I clicked on the link to the study, whose name do you think I read listed among the researchers? I'll give you a hint: it's an actual neuroscientist, instead of declared "scientist" who throws out everything we know about neuroscience. Yup, it was none other than our old friend, Dr. Adrian Owen. He's still working with Cambridge University, though he's now at Canada's Western University, ever striving for the advancement of covert cognition detection.

Thursday, October 29, 2015

Origin Story

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My latest Secular Spectrum post tells the tale of how I transitioned from agnostic to atheist and finally evolved into a skeptic. Here's the link: Origin Story.

I was raised an agnostic, so when I realized I had become an atheist when I was 13 or 14, it was hardly a wrenching transition. But I reveled in tales of the supernatural and such pseudoscientific subjects as ESP and clairvoyance. I even thought I might be a bit psychic. Something changed when I began identifying as an atheist, however. Slowly, I began seeing the world through a critical filter. So long ESP, hello confirmation bias.

Wednesday, October 28, 2015

On This Day


Two years ago, yesterday, according to the On This Day Facebook app, Keith shared the above photo of me on my four-hour tour of our house during my second furlough, as they called it, from the nursing home, Country Villa Sheraton. Furlough, as if I were getting out of prison. Country Villa was far from the Sheraton, but I was receiving desperately needed physical therapy. One of my most difficult exercises was to stand. That was it. I would just barely struggle to stand up, over and over again. "That's ten," Denise, the occupational therapist, would say. I would rest a bit, then she would say, "Let's do another set." It was like musical chairs without the music...or the fun. The prize was that I would be able to get up from a chair without help. It was utterly exhausting for me--that's how weak I was. Only a month before I could barely lift my head from the pillow.

I have many more readers than the last time I wrote about this, but this previous post makes a good primer about what I went through as I struggled to walk: A Journey of a Thousand Miles. As it details, another physical therapist confided to me that the other therapists thought John Silva, the main physical therapist helping me to relearn how to walk, was rushing my walking.
John Silva helping me on my first walk outside the nursing home.
But if John hadn't put me on such an aggressive program, I wouldn't have even been able to leave the nursing home when I did, and I would've lost my Kaiser Permanente health insurance. I had to be out by November or my coverage would've gone bye-bye. As woefully unprepared as I was to return home, I needed that coverage, considering that I still had a serious autoimmune disease, dermatomyositis. I could've continued with non-Kaiser Medi-Cal coverage, but my quality of healthcare would've suffered without Kaiser's superior care. And, we would've had to pay the nursing home out of our own pockets because it's likely that Medi-Cal wouldn't have paid to keep me there either. A Kaiser social worker who worked at the nursing home confided to me that in a few months time, what Kaiser was doing to me would be illegal. That was because the unfairly maligned Affordable Care Act--better known as Obamacare--would be taking effect then.

During that first furlough, I slipped and hit my head on the toilet because I wasn't used to a four-wheeled rollator. Don't worry, I wasn't hurt; I have a hard head. I'm lucky I didn't crack the toilet. John had instructed me to sign out a walker to be used during my furlough, but he was off for the weekend. A tightly wound physical therapist who disagreed with John's methods refused to allow me to sign out a walker (though this was a common practice). Without John there, I was at her mercy. So Keith went to a large local drugstore to buy one for me, but they only had four-wheeled rollators. The kind of walker I had been using had only two wheels, with rubber stopper ends on the front legs. I later learned that four wheels aren't recommended for people with little physical control. But Keith didn't know that either. If that therapist had allowed me to take a walker with me, I wouldn't have hit my head. As I said, I was okay, but that was a lawsuit waiting to happen.
After I returned home, I tricked out the walker with a tote and a cupholder.

The second home visit went smoother because Keith had ordered a two-wheeled walker from Amazon, which I continued to use until I was strong enough to handle the rollator. To the right is a photo taken on one of my first rehab walks using the walker Keith bought. And below is a photo taken on our first rehab walk at Vasquez Rocks, when I was finally strong enough for the four-wheeled rollator. The rollator opened up areas like Vasquez Rocks that would've been too difficult to manage using the walker, which created a lot of drag, even with the ski glides we put on it.
I wasn't walking fast; it's really windy at Vasquez Rocks.
This Friday, we will be carving pumpkins for Halloween. We'll also be holding a belated birthday celebration for Joella, Keith's mom. During her birthday, she was away on her annual summer pilgrimage to visit her other two sons and their families. Friday will also be the second anniversary of my return home. My homecoming was on the day before Halloween. I did not, as our custom, carve a pumpkin. A knife in my feeble hands was not advisable. I didn't want to return to the hospital so soon after leaving the nursing home. I was still recovering from MRSA pneumonia and I was experiencing painful spasms in my right foot that were eased somewhat by vibrating slippers. Thus, instead of my usual jester costume, I wore a warm sweater coat and matching vibrating slippers, since wearing only one would've looked weird. Yes, it was Halloween, but it wasn't that kind of fun-weird. I was dressed as a sickly person who had just gotten out of the nursing home after a six-week coma. I think the bandage on my tracheostomy site was a nice touch. The gloves were to hide the open sores on my hands, which had not yet healed, a legacy of my dermatomyositis. Maybe I should've used my hands as part of a zombie costume....
Handing out candy and toys to the trick-or-treaters with Joella the day after my return.
Last year, I was strong enough to carve two pumpkins and I wore the jester costume.

Last Halloween with Joella and her dog Sadie. Traditionally, I hand out the toys and Joella gives out the candy. Sadie handles the sniffing.
This year, I will have fuller hair, but more importantly, I won't need to use a cane. I only use it now when I'm out to provide stability. Everyone needs a bit of stability in their lives. I would've benefited immensely from a few extra weeks in the nursing home, but it was certainly nice to be home.

Friday, October 23, 2015

“Please Put a Blanket on Me” — I Was Aware in My Coma

This photo was taken on the day I was transferred to a nursing home, five days before my awakening.

My second post for the Secular Spectrum explores covert cognition, like I experienced, and explains why it negates the arguments for mind-brain separation. NDE true-believers insist that the brains of experiencers couldn't generate what they perceived because their brains weren't functioning. Well, my doctors claimed that I was profoundly brain damaged and wrote me off as a vegetable even as I was experiencing a rich fantasy life. My brain certainly was active enough to produce my coma-dreams.

Here's the link to the post“Please Put a Blanket on Me” — I Was Aware in My Coma

Thursday, October 22, 2015

Coma chameleons

Now that I'm a contributing writer for The Secular Spectrum, I have a new outlet for my skeptical and humanist writing. Therefore, I feel free to write more directly about my recovery again in Coma Chameleon again. This blog is subtitled, My Recovery Chronicles, after all. This post, however, is also a continuation of some of my recent subject matter.Yes, that's right, my fellow coma victim and experiencer, Eben Alexander.

A few months ago, I finally received my hospital records from my 6-week coma in 2013, after being mistakenly given the records from my two-week 2014 hospitalization. Both were due to Legionnaires' disease, caused by immunosuppression. Thanks, prednisone.

The 2447 pages of the PDF (I received it on CD) is a treasure trove of details, sandwiched between mountains of repetitive information. I don't have the space to go into all the information, and I've only skimmed through parts of it. But I did learn one juicy tidbit. I knew that my lungs and kidneys were failing, but apparently my liver wanted to get into the act, as well. When I mentioned this, Keith joked that my spleen was doing fine, as was my appendix. Everything else was going south. My impression is that the liver problems weren't as severe as the other organ failures, a speculation my neurologist later confirmed. Otherwise, I would've been given a Charlson Comorbity Scale of 3 instead of 2. Think of what it would've done for the miracle-believers if I had managed to survive a score the maximum of six out of the twenty-two frequently fatal conditions that make up the scale.

In Proof of Heaven, Eben Alexander actually implies that the very rarity of E.coli meningitis in an adult is evidence that God chose him as His Special Messenger. After all, as a neurosurgeon, he was the perfect emissary to the disbelieving medical and scientific community. Yeah, right. Wouldn't neuroscientist Sam Harris have been even better? I suppose his argument is that God chose a rare condition as a sign that this was an act of God. Isn't he special? According the famous Esquire expose, Alexander has a reputation of arrogance. And he hides it so well.

At any rate, he seems convinced that the severity of his illness is another sign of God's hand. But as someone who was at least as close to death, you'll have to forgive me for not being impressed. My doctors were every bit as convinced that my death was imminent. I'll take one life-threatening bacterial infection--in my case, Legionnaires' disease--and raise him multiple strokes on both sides of my brain, severe sepsis, lung, kidney, and liver failure, as well as another potentially fatal bacterial infection, listeriosis. And compared to his measly seven days of coma, I was comatose for six weeks.

Take that, Eben Alexander, messiah to the scientific world.




Wednesday, October 21, 2015

My first Secular Spectrum post


The theme of my first post for the Patheos Atheist Channel group blog The Secular Spectrum will be somewhat familiar to my regular readers, but I took a particularly satirical tack to introduce my story to a unfamiliar readership. It's not hard to satirize the fact that so many believers think God bestowed a miracle upon such a committed atheist. Here's the link: Miracle Girl?

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Coma Girl

Coma Girl

Not a miracle recovery, but a miracle of modern medicine

In 2013 I fell into a six-week coma and nearly died after I contracted legionella. The Legionnaire's disease was in turn triggered by immunosuppression caused by the prednisone I was taking for my rare autoimmune disease, dermatomyositis.

I suffered a series of strokes on both sides of my brain when the sepsis caused my blood pressure to plummet. I fell into a deep coma. My kidneys and lungs began to fail, as my body was began dying one organ at a time. My doctors told my loved ones to give up hope for my full recovery. They expected me to die, and even if I somehow lived, I would remain a vegetable or at best left so hopelessly brain-damaged that I would never be same. But unbeknownst to them, while they were shining lights in my eyes and shaking their heads, I was telling them in my coma-dream--my secular version of a near-death experience--to leave me alone because I was trying to get back to sleep. I was experiencing what is known as covert cognition, the subject of my Skeptical Inquirer article "Covert Cognition: My So-Called Near-Death Experience," which appeared in their July/August issue.

But it wasn't a miracle--despite what so many continue to believe--that I recovered so fully. I owe my life not to God, but the miracles of modern medicine, as well as the nature of the watershed-area brain damage I suffered, as I detailed in my article and in this blog.